Rekai Wellesley Central Long Term Care Home

Relatively new, new concept of one person per room.  Much like a bachelor apt. but with no kitchen obviously, there is a central diningroom on each floor per wing.  2 wings per floor.  Private has their own bathroom, basic has a shared washroom.  That's the only difference.  Even the room size is relatively the same.  The waiting list is about 6 yrs believe it or not.  My mom went on the list in early February 2011 and it's now almost Oct 2014 and she's still # 30 on the list. 

So what is the problem?  The lack of care.  It's beautiful..  it's clean for the most part.  It does however have bedbugs occasionally and today I saw a bait mouse trap too in the room my mom was staying in.  This building is only about 7 years old now.

There have been a lot of problems over time when I take my mom in for respite.  She goes once or twice a month at the cost of $109.02 per 3 days.  Why do I send her there then?  Because it is the only one she will go to.  Because the next closest one her mother passed away in.  And the other one about a couple of blocks away is 4 people to a room.  This is the only one she will go to.

I have been keeping track of the problems though.  So.. finally after yet another frustrating visit to their facility I wrote the following long letter:

April 28th, 2013

Mr. Rod Cartagena,

(Acting) Executive Director,

Wellesley Central

 My mother comes to your facility on a regular basis for respite.  Usually for 3 days at a time but this time, due to the fact I broke my foot, she came for 5 days for her last visit.  (started Apr 23rd) My mom can’t bear weight so she can’t get up and get things herself.

  Over time there has been the odd issue but the only one I’ve talked to Jack about was the lady across the hall when my mom uses room 2054W.  The lady directly across the hall has a bad habit of playing her music very loud.  She doesn’t even close her door when she leaves the room and leaves the music on.  My mom has a hearing issue and due to the loud music this lady insists on playing with her door open even when she’s not in her room, my mom can’t hear her phone ring!  I call and call and start to get concerned when I get no answer and end up going over to check on things but the only issue is the loud music and my mom not being able to hear her phone over it.  If she has the phone close enough and manages to hear it, she then can’t hear the conversation due to the music.  This is very frustrating for my mom and at times for me as well since I end up going over there at times just to check on her or to see if she needs anything.

  Occasionally she gets confused, this is nothing out of the norm for an 88 year old with her health issues..  A while back she fell a few times while there so I asked for a mat for in front of her bed.  They did it for that weekend but come the next visit I had to ask again.  And the next visit I had to ask again but this time the nurse told me she documented it so it was always made available for her in case she falls.  It seemed most every time I went to visit the mat was moved or gone.  There was no mat again this time.

Many times I’ve found her still in her pajama’s at noon and no one ever cleans her dentures either.  I spoke to one of the p.s.w.’s about this, a lovely lady named Pearl and she assured me she would speak to someone. 
I’m not saying my mom is a dream visitor.  She does indeed have her moments but again, she’s 88 and has some memory issues. But this visit it seems just about everything went wrong.  She tends to at times pull the call bell for things she shouldn’t and I’ve spoken to her about it as well.  She tells me she’ll do better but again…  she forgets or thinks the reason is appropriate.

1)       I had to ask for a mat and it was never provided for the entire 5 days.  If there wasn’t one available, I wasn’t informed.

2)      No one cleaned her teeth again for the entire 5 days she was there.

3)      I found her liquid diet on her night table beside her bed and it was warm so it must have been there some time.  She is on a prescribed liquid diet that is dairy based and must be refrigerated.  I threw out what was left, went home and made a fresh one and brought it.

      4)      For whatever reason Norvay (the nurse) does not give her her medications with applesauce.  This is a must and tonight (Sunday) while my sister and a guest were there he again gave her her pills with nothing and she choked on one.  She has esophageal dismotility and requires applesauce to get those pills down.  I don’t know why I can’t get this information passed from one staff to the next but I have spoken about it many times and she always comes with a binder with notes in it as well.  And it states right on the top of her medication list that it is to be given with applesauce.  She could have aspirated that pill.

5)      Again a few times I dropped in around noon and found her still not cleaned or dressed.

6)      To try to make things easier for everyone I make a list of activities for her to partake in.  This keeps her busy and to some extent tuckers her out and she sleeps better.  Not only do I make the list for her but I go over it daily with her and I make a list of activities she’d like to go to and tape it to her room door so whomever takes the residents sees it.  Problem is..  she never gets to the morning things because she’s still not dressed or has napped an no one will wake her up and ask her if she still wants to go.  But if she’s not even dressed until noon how is she supposed to partake in these things?  Then she gets upset because she missed something she wanted to attend.  Especially on the weekends when there is less to do.

7)      Then she had to deal with the loud music again from across the hall.  I was visiting with her on Friday and even I was having difficulty hearing her.  My mom doesn’t speak really loud at times.  So I got up, went across the hall and pulled the door ¾’s of the way shut and then did the same with my mom’s door.  My mom panics when the door is closed so I had to leave it open some.  Well that went over like a lead balloon and the lady came flying into my mom’s room in her powerchair yelling about touching her door.  I told her that we can’t hear over her music and she said that she always has it like that then off she went on a tangent yelling at my mom to close her door.  This lady has no respect for the other people around her.  There is no reason why she needs it that loud with her door open and especially when she leaves the room. 
 While trying to write this letter my phone rang again and I couldn’t get to it fast enough but it was from Wellesley Central.  It’s 8:44 pm.  When I checked the message it was the nurse, Evangeline asking me to call her.  I called immediately back only to be told my mom fell !!  And of course, there is no mat even though I asked for one, even though I was told it was documented that she needed one.  Evangeline told me that my mom hurt her back and said her tummy hurt as well.  I told Evangeline that I didn’t know what the heck was going on in there lately but that I was in the middle of writing a letter about her stay.  I told her I would call my mom and speak to her.  Which I did. 

 My mom told after her fall they put her in her wheelchair and then into her bed.  She got too close to the edge because she was trying to get someone’s attention to change her undergarment and into her pajamas.  She was tired and wanted to go to bed but couldn’t get anyone to respond to her.  When you take into consideration the time…  my mom was clothed less than 9 hours today.  She got dressed just before noon and it was now going on 9 pm and she wanted/needed to be changed.
Anyway, she said she was in pain, her back especially.  I asked her if she asked for a green pill.  It’s her breakthrough medication, her hydromorphone.  She said she did but no one brought it.  So at 8:53 pm I called back and no one answered.  I called 3 times and finally Evangeline answered and I asked her to please have Norvay give my mom her breakthrough medication as she was in pain from the fall.  She said she would.

 Now..  I had asked my mom to call me when she got her medication for the pain from the fall..  she called me at 9:15 pm, about a ½ hour after the fall and from the time she originally requested the pill.  When Norvay came in and gave her the medication at 9:15 she also asked him for her other prn medication for her stomach.  He told her he gave her one when I was there earlier.  No he didn’t.  I was there at just after 7 pm and I only saw him in the hall and briefly to see if she had enough of her prescription diet to last the night.  I never saw him  in her room, nor did I see him give her that medication.  And even if I did see it, she has severe nausea, severe enough to take Ondansetron and that’s what she was asking for.  Even if she had taken it when I was there, which she didn’t…  there is no reason to deny her another one 2 hrs later if the nausea still persisted.  I’m not understanding why she isn’t getting prn when she requests it.  And hopefully he leaves an hour between the hydromorphone and her next set of codeine.  I’ve  gone over this many times too, there has to be an hour between the two.  I’ve even made a large note of it with her med chart.
 It’s now 9:31 pm and still no one has come with her ondansetron so I’ve called yet again and requested it.  Evangeline told me Norvay gave her the hydromorphone and I told her I knew that however she is allowed both, they are different pills for different things.  She also told me she got a mat for in front of my mom’s bed. 

 At 9:50 pm she finally got her ondansetron. 
It was a rough 5 days to say the least and I was there a lot more than I wanted to be and on the phone a lot more than I wished to be. 

 When I went to pick her up the next morning the room smelled a bit.  I know that smell.  She was not dressed, only partly dressed.  Quickly I got her dressed because I had to have her out early that particular day.  The person that wheels her home for me had an early appt so that made it an early morning.  I had let Evangeline know I would be there by 9 am to pick her up.  I started to collect her clothing and discovered her pajama pants on a cloth chair in the room and that is where the smell was coming from.  There was feces on her pajama pants and they were on the chair!!  This is unhealthy to say the least.  What if she had some infection or something and now it’s on the chair?  Couldn’t someone rinse those pants out?    The mat was there, but it looked more like a door mat but long then one that would protect a person in a fall.  It was dark blue, thin and rock hard.  Not the beige, soft mat.
If this can be looked into, I would appreciate it.  It’s not very hygienic not to have ones dentures cleaned in 5 days, nor is it healthy to be in dirty undergarments. It tends to confuse her to be in her pajamas most of the day too.  It throws her off, not knowing if it’s day or afternoon. The dirty pj’s on the chair is another health issue.  I want her to participate in the activities, it’s important that she is stimulated mentally and physically. Those that fall get a mat after the fact….  Etc.  That poor woman comes home with bruises half the time.  And due to the noise issue, in future, if possible I would greatly appreciate it if she could have the room on 2 East instead of West.

Sincerely,

so I waited for a response...  and I waited longer.  I hand delivered that thing.  Over a week later I get a call from some woman named Natalia (or Natalie) and she informs me that Rod handed it over to her.  Nice of Rod not to even call or acknowledge the letter.  She tells me she left me a voice mail some days back but I never got it.  Anyway, she tells me how important all these matters are and that she is going to look into it all and will absolutely get back to me.  She also said she knew my mom was coming back that weekend and that she would meet us in the home lobby when we get there.  She asked what time we were getting there so she could meet us. 

So Friday comes and off we go to the home and we wait in the lobby..  and we wait some more..  no Natalia.  I ask them to page her.. they do..  no Natalia.   Then I find out that they have put my mom back in the noisy room. Wonderful.  We get up there, (I'm tired of waiting for Natalia and my mom wants to lay down) only to discover no mat and the music from the next room blaring. 

We page Natalia again..  nothing..   and again..  and nothing.  I need to leave and finally she pops her joyful little head in the door greeting everyone like it's Christmas or something.  Says she'll get a mat (which came many hours later after my mom kept asking for it) and she will take to Bernadette the noisy lady.  I hear her conversation with B.  "Please don't be mad at me Bernadette but can you turn your music down a bit?"

This place is something else..  the inmates run the asylum.  Bernadette blasts her music and it drives all the rest of the residents crazy but she's allowed to interfere with their lives on a daily basis.  There's another one that goes out and gets stuff from who knows where but has brought bed bugs back into the unit too.  She has a room like a hoarder, stuff from floor to ceiling.  And that's allowed too.  One time my mom was there this particular woman and the next one were being fumigated thanks to her bargains she brought in.  They moved her to live in the library for the time of the fumigation and the next lady to the tv room to live. 

So my mom couldn't hear all damn weekend to use the phone again.  As far as Bernadette is concerned my mom should just shut the door and shut herself in there because that's how she's always had her music.!

These problems NEVER go away though.  There is always an issue over the fall mat.  There is always an issue over the brushing of her teeth.   I started yet another letter and that one was going to go to the Minister of Health and Long Term Care as well as Rod again however my mom started to have a really bad time with health issues again and it never got sent.  I can't even find it at this point but I'm about to write yet another one. 

Everyone has excuses.  Excuses for what there should be no excuses for!  Even when I had my mom at the Elders Clinic to see a Dr. and I'm telling her about the problems there she made excuses for them.  Oddly enough this Dr says that she thinks the problem is my mom is just short stay and not a regular patient there!  Really...???  so short stay people don't need safety measures?  Their teeth cleaned? Taken to activities to keep them stimulated?  All the rest of it???

Even someone from CCAC gave me this excuse..  bullshit.  Long term vs Short stay..  safety issues are safety issues and health issues are health issues and regardless of the length of time you are there you still require both for seniors but no one seems to get it.

This weekend (Fri Sept 26th to Mon the 29th) I saw it all again.  I talked to the new person that books people in and I wasn't impressed.  Prior to my mom going over I discussed the fall mat with her and insisted one be in her room.  She insisted on meeting us in the lobby.  I should have known how that would go.  After waiting a bit I decided to hell with it, my mom needed to lay down and I'm told I need to wait for her, she needs to see me.  So we wait some more over by her office.  Still nothing.  About 15 minutes later she finally comes out and goes and see's someone else!  btw, I sent my mom to her room.  Finally I am tired of waiting and go after her.  Now she's lost all my mom's paperwork ... really??  huge green folder and has lost it.  I give her the cheque (yes, it costs.. $109.02 for 3 days) and she's confused.  Has to ask someone else if the amount is right.  Still can't find the damn paperwork.  I sign a different paper instead so I can go.

I get to mom's room to find they have someone else's name on her door.  Oddly enough, same first name.  Two days into in they finally change the name but her last name is spelled incorrectly.  A lot of good that is if they need to look something up with her last name.  The wrist band they give her is so huge that she could probably almost wear it around her neck.  How stupid.  Seriously, it's huge.  Unless you are 300 lbs there is no way your wrist is that large to keep it on.  More incorrect i.d. 

No one brushed her damn teeth again.  I decided to the first day, for some reason the 2nd day I found all her dental stuff in the washroom but it hadn't been used.  Still the same amount of mouth swabs, still the same amount of polident tablets..  same amount of everything.  I asked her just in case and she told me no one did it.

The fall mat finally arrived some time between when I left around 3:30 and when I returned around 7 pm.  But it took many requests and when I asked again at the nurses station the nurse knew nothing of them and neither did the p.s.w.

At one point I had to charge my mom's cell phone.  I asked two p.s.w.'s if they could please unplug it in a while because it was on her bed and it's a safety issue.  If it gets too hot it could start a fire.  Guess what wasn't done?  Next morning when I got there, it was still on her bed on the charger. 

Her nurses were from an agency.  They got rid of most of their regular nurses to cut costs and now hire agency nurses which for the most part can't find work elsewhere.  The guy is nice enough but a bit on the stunned side.  His accent makes him difficult to understand at times so I'm wondering how the seniors understand him. 

The nurse situation went like this..  I go in Friday night and it's a nice young lady.  She tells me she's had problems with getting mom to take her meds.  I said I would go try myself.  This I don't mind.  I get in there, sit down beside her and she says hi.. and bubbles come out of her mouth!!  teeny tiny bubbles like soap bubbles.. they float in the air.  Wtf is that?  Next thing you know she starts to spit out the gel cap of a medication she was given!!  Great..  she didn't look to make sure she took the meds and that's a choking hazard.  I let her know and then got the rest of the meds into her.

But..  now her pain meds are like 2 hrs late and this nurse is ready to give her her next lot of pain meds soon!  I tell her she can't.  She should have kept trying and not leave them on her bedside table for a couple of hours.  You can't take that much codeine now and then take it again in an hour!  She'll overdose.  She says she'll wait a while to give her her pain meds again.  sheesh.. ya think?  I also mentioned that my mom has a nitro patch that needs to be put on at night and then taken off 12 hrs later.  She said she would put one on later that evening which was fine with me.

I then get a call Saturday morning because my mom wouldn't take her meds.  This time it's a man, Chinese I think, accent is thick.  But I get it.. she's not taking her meds.  So I tell him I'll be right over and head out.  I get there at noon and find her meds sitting on the bedside table in the applesauce all melted and mush in there.  So now if she can't ingest that much applesauce she isn't going to get all her meds.  So I start, and I give her all her meds and again try to reinforce the fact she needs to take them for the nurse.  When confused, my mom can be stubborn and not swallow or refuse her meds.  I can't help that but sometimes you just have to persevere.

 I tell the guy about the nitro patch as well but while I'm talking to him I see his computer screen with my mom's meds on it and the bloody thing is all WRONG.  It has the meds she was taking last April on it!!  No bloody wonder he was confused about her meds too.  It has meds she no longer takes on it, and strengths that have been changed since then.. 

When I take my mom there I take a binder every time.  In that binder is pertinent information about her and the very first page is a list of all her medications and when she takes them.  What they look like and the dosage.  It couldn't be more clearer.  Obviously nothing was done with the list because it certainly wasn't updated on their end.

That night, Saturday evening, I am talking to the nurse about my mom's nitro patch.  She was going to put one on.  We looked because there was no documentation about it and there should have been.  We didn't find a patch so we put one on.

Sunday morning I talk to the male nurse again and this is what he tells me:

"I took off both patches this morning and then put a new one on!!!"

Excuse me?  TWO patches??  Yes..   I put one on the day before and there was another one on there so I removed them both and put a fresh one on!

holy shit...  so she had 2 patches at once.. she wore them both at least 12 hours and then he takes them off and IMMEDIATELY puts another one on?  I pulled that one off and tossed it.  Told him.. 12 hours on and 12 hours off.  It says so right on the box you took it from!

I swear they will kill her one day in there with her meds.  A few times no one bothered to change her fentynal patch either.  She no longer uses that thankfully.  Another time, no one gave her her antibiotics either.  It's a challenge to say the least when they have all her damn meds there in a dosette and all they have to do is open it up and dump them out.  It's not rocket science.

She also told me she fell out of bed but according to the p.s.w. she didn't. 

And again, they didn't bother to brush her teeth.  I take a full kit with her.  It has a container, 3 polident tablets, 4 mouth swabs and her denture paste.  I did her teeth the first night and then came home with 3 mouth swabs and 2 polident tablets.  Here are some pics:




 
The crap on the dentures is what was there when we removed them.  It's from not cleaning them.  The crap on the sponge is what was cleaned from inside her mouth.  How disgusting is that?
 
The we have how dirty some things are in that place...   for instance:




 
The above pics are one of the bedside fall mats.  They are disgusting for the most part.  I swore that if she got this one again (she has several times) I would take Fantastic to half of it and take pics to show just how filthy it is.  And see that mug?   My mom doesn't drink coffee in there...   that is a filthy mug they gave her for her water. 

And you wonder why people get so sick and die so fast in nursing homes?  This should answer a question or two in regards to medications and dirt.

Oh.. and when I went to pick her up Monday morning at 10:30 I discovered that she didn't even have her morning pills yet and they were suppose to be in her around 8 am.  There was NO NURSE.  Seems the agency couldn't even send one so they were using two nurses from other floors to run to her floor and fill in.  No wonder she was having pain.

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